life

today I am reminded that we all need to hug,kiss, and love our children. just how they are.. so many times people, me take for granted life and the life of our children. I am a regular member on a chat room type place, its a place were moms came come together and chat about there special needs child. sometimes even get free or reduced medical supplies. if it werent for this place emma would have no feeding tube extentions and for me I would have no many people to chat with.. any how.. I made a friend on there, not a close friend but we have chatted. her baby has passed on.. I hope the mom is ok.. i just feel so bad. plus another mother on this site just lost her lil boy.. life is so scary,funny we never know when its going to be our time.. so please just love your life, love your family..be grateful..please say a prayer for cynthia and her baby cheyenne.
on the good front.. emma ate about 2 tablespoons of baby food tonight i think she really liked the flavor.. this is the ONLY time she has ever reacted like this.. she was trying to chew it and even swallowing it.. I know it smelled good.. If I put it down she would wine.. which is new too.. shes so peaceful.. ow my car is about to get repossed all i can say astaloowago.. buddy.. on the good news is ssi is going to give me 2000 of her money to buy a used car.. wooohooo.. I just pray to the lemon fairies to stay away from my car.. i hopefully i can go get it tomorow.. well thinking of everyone.. oh yea emma got her 5th tooth..thats only in 3 months crazy. and she has another ear infection thats 3 in 2 months.. so ear plugs are probably in our close future.. bless and love to all..

emma and speech

well we went for our 1st speech eval at the new place, loved it.. Its a christian based therapy place and they just seem so nice.. her appointment went good.. I know as emma's mom how much she communicates.. she smiles and interacts with me but no type of verbalizations or really communicating. i dont know you guys would understand that but.. she scored at a 1-3 month old level on verbalization. so our sessions are going to somewhat focused on finding the right equiptment for her.. although it will have to be tough because she will beat something to death.. guess we cant get her a puppy. lol... nics doing good in school. I think hes gonna need glasses.. boo hoo... hes been in some type of special education since he was about 3 and a half. I guess tennesse is more strict out here.. even though he cant concentrate and complete his work in a timely matter I think there gonna drop him. unless he winds up with hearing problems.. hes failed 2 hearing tests and passed one so im still gonna get that rechecked.. other than that all is good.. still broke, fat, depressed.. but im still kickin..lol..

I hate the government

Graphics / Myspace layouts

sorry for you sensitive folks out there... but i really do hate the govt.. they dont care about people.. if your unemployed to long you cant get help but if youve had a job for 2 weeks you cant get help in a hurry either.. they tell i have to cancel my food stamp car in south carolina to get help so i do.. now they say were not in emergency status any longer.. what the F four and half months of being unemployed is not an emergency.. my kid has flunked a hearing test and an eye exam.. is that not cause for some medicaid in a hurry... frikriloeirlakdsnfkjdbk;....

watch out world

MY LITTLE ARTIST..

Well today and everyday im reminded what a total miracle emma is.. when i see pictures of other children with her syndrome..alot have passed and some are fighthing for there lives.. emma was blessed i am so thankful for her health.. she may not walk or talk or eat.. but i would have that any day over her being seriously ill.. Please pray for lil recesse.. she is really ill and has a constant battle with life.. I wine and cry about my bills and life but nothing would be worse than having a sick child.. i seriously need to check on nicholas's nerves or what ever you want to call it.. he just has no sense of handling his emotions.. he goes from 1 to 10 in 1 second flat.. he will hit himself and just go crazy.. maybe hes seriously spoiled i just dont know.. i know it tears my nerves up..

Well so far school is going ok with nic.. were out of adhd meds so its been a chore to do work with him.. he started cub scouts this week.. can you believe the uniforms are like 100 dollars.. thats freakin crazy.. he seems to like his school though.. well we seen a pediatrician.. who sucks.. hopefully when we get to meet ours hell be nice.. we should be starting speech physical and occupational therapies soon.. still havent found anyone to order her a walker..blaa.. emma is doing really good she did have a second ear infection in 1 month.. so i might look into an ear tube.. we have to protect her one ear..she has been getting really vocal lately its so cute.. still no real baby sounds.. but hey atleast its some noise.. shes loving to stand up.. shes also liking stage 3 baby food.. not really drinking though.. we got a new fancy feeding pump renting of course.. oh yea i might be able to get a paycheck since i stay home and take care of emma.. so cool.. and emma might start school.. what i know.. its for disabled kids its only like 6 hours a week but i think it might be good for her.. of course ill check it out.. well later for now.. me and jj are ok.. well be better when we get caught up..

yippeee

Ok he worked the other job 1 day.. then got a new full time better paying more hours job.. wuuuhuuuu... i just hope he likes it.. its for a big plastics company.. now we just have to get caught up some how.. but hes employed thank goodness..

she knew she got something fun.. she is too cute.. its a little to big for her.. but untill we get one. this will have to do.. she also got a rifton chair from a donation center.. so awsome.. well jj finally went to work today for like a quarter of what he used to make.. i just dont know how were gonna make it.. I feel so bad for him.. he is a strong worker he puts his heart into companys and the just dont care.. he just wants to find a career he can retire from.. is there really any of those out there any more.. not sure if im liking this town.. i guess once we make some money maybe itll get better i hope.. how much bad luck can there be.. so as you pray for me and my family pray that this lil cloud will go away.. pray that emma will recover soon from her ear,uri, and yeast infection.. pray that things will turn around.. and pray that this fat role will run away from home...lol

were settled

well were finally here and settled.. its taking alot time for his paper work to go through so no work yet.. i guess you can say were as broke as a church mouse.. nic has got a new friend already.. he started school and thinks hes the coolest,cutest and fastest boy in school.. just like his daddy. we got emma a used table, bath chair, we got a walker but it was to big and was like a torture chamber.. me and jj have been fighting alot. i think being broke with no tv really gets to ya.. but we have tv now so maybe things will get better.. i can not wait for him to go back to work and have some space... its hard to compete with superman... well ill update when i can, my hubby thinks i spend to time on the computer already even though we havent even had a back a day.... I so need an alone vacation... oh yea emma pulled her mickey out last week. she has an ear infection uri and got 2 teeth and i think shes trying to cut some more.... fun......

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