Wednesday, December 31, 2008
I'm back with some new pics
well christmas went pretty well.. were all moved and loving the new place.. got lots of new pics.. if you have time to watch the montage at the end is a small video of emma in a johny jump up.. she was hillarious in it.. when you see her move side to side thats when she was cracking up.. shes giggled but never has she ever had a good gut laugh it was great she had us all crying it was so funny.. so emma got on tv for like a second.. I knew they would cut us.. we are just not camera people we freeze up and its just not good.. so hope everyone is good.. now watch my video.. heres a picture also of emma getting Jr asparagus from veggie tales.. she loves them so much..
Tuesday, December 16, 2008
so excited for emma
well i have to edit this update..jj's work hired him sooner than we thought.. so thats means no check for 2 weeks. we litterally have 1 dollar when it rains it pours..blaaaaa


we went to occupational therapy today and found out someone has adopted all the special needs kids and got them a bike for christmas.. I am so excited for her this is one item I wanted for her.. can you believe someone would do that just awsome.. her new walker is going to be in today so we can pick them both up hopefully on thur.. hes a picture from elfe your self.. i love that site.. i know a lil cheesy..


we went to occupational therapy today and found out someone has adopted all the special needs kids and got them a bike for christmas.. I am so excited for her this is one item I wanted for her.. can you believe someone would do that just awsome.. her new walker is going to be in today so we can pick them both up hopefully on thur.. hes a picture from elfe your self.. i love that site.. i know a lil cheesy..
Thursday, December 11, 2008
A ray of hope in our luck..

Well let me start off by saying wooo hoo im at 100 posts.. I know who cares.. anywho.. today has been very overwhelming.. The emergency grant that i am recieving has truly saved us.. not only have they approved it but they are going to pay 2 months rent, security deposit, and start our utilites.. Then a very nice person offered for me and my family to stay with them through the holidays.. unbeliavable kindness these people have shown my family. oh its not over.. JJ'S work wants to buy the kids each a toy, then another lady gave jj 3 $15 gift cards...and of course you mommy..:) its going to be a hectic time around here, moving, packing, school, therapies...nicholas should get in to see the specialist soon.. I hope he really needs his meds.. a few years ago i was totally against them but now.. I see the diffence. we are looking into him maybe having odd.. its opositional defiance disorder.. who knows though.. i cant even ask him to brush his teeth without a battle.. life is very stressful around here.. thanks for all your support to the few that read this.. I know I have whined alot lately but maybe next year i will live up to my name and be a JOY.. If you guys have a united cerabal palsey in your state look them up.. they have so much stuff to offer people..
Wednesday, December 10, 2008
moving at christmas!




Ok so we went to court today.. I basically got kicked out because emma would not be quite.. my non verbal child picks today to be noisy..lol.. but the judge sided with them..and we have to be out in 10 days..they couldnt even figure out how much we owed them, dumb ass's.. jj had to explain it over and over again..so basically we owe them 400 for dec.. which means we didnt even owe for last month.. its all very confusing.. but the good news is our emergency housing grant has gone through and hopefully we will get that real soon since we only have 10 days.. hopefully the place we want will let us probably not now since we have a evict on us.. dont know how all this works im new to this looser life i lead..lol..
well emma is doing really good at pt..I have to start brush therapy on her.. its really strange..she hates anyone touching her upper half.. so this should help with that.. but from what im hearing she has basically failed speech therapy.. they had already just switched to finding a communication device. but she only wants to beat on things and she has to learn to manipulate things and so far she has not got it.. so we might just switch to feeding therapy... im probably gonna have my phone and stuff cut off in a couple of days so i will be inspired to pack again.. im posting some pre chistmas pics free food and bowling..woohooo.. so christmas might come next year for us.. so pray for us and well pray for your this season..
Sunday, November 30, 2008
Wednesday, November 26, 2008
happy turkey day..
Well this has week has been a big bummer lets hope next week is better.. we went to the free clinic for us the adults.. woo hoo was that fun.. when it was my turn to watch the kids i got a baby that pooped molten lava from her plummer crack that dribbled down and into the kid kart, they had no changing station so i just had to throw her blanket over her to change her and 1 pack of wipes later she and the stroller was clean..then i put her in her car seat twenty minutes later she wakes up and pukes everywhere.. so now all i have left for her to were is a jacket and a blanket.. it like 40 degrees outside..yea that was fun.. my hubby is really depressed i'm trying to stay positive about things but its hard to be when your partner is so down.. talking of partner.. tomorow is our 9 year anniversary on turkey day.. woo hoo guess well have to go to burger king and celebrate.. thats how poor we were then we got a burger through the drive though.. wooo FANCY.. well Ive applied for an emergency assistance grant to move on.. lets hope it goes through because right now were not doing so well..pray pray pray.. happy turkey day everyone love your family and friends.. its not easy just having a family of 4 and no one else..
Monday, November 24, 2008
BIG BLACK CLOUD GO AWAY!!!

ok big black cloud in 30 seconds. 2 transmissions blown. our dog of 12 years got ran over while our daughter was in the nicu for 5 weeks. husband unemployed for 5 months. lost our home our cars. had to relocate to a whole new state for a job. still 4 months later have not got work from these people. my baby has chronic ear infections, my son has not had insurance for 5 months. we are a lil late on our rent and we get evicted.. having to move and pay for christmas in 1 month.. priceless
Ok here we go again..we are 100.. dollars late on our rent.. we owe 2 $35 late fee's. and $300. toward pets fee's which we are supposed to make payments on till paid off.. so basically we are 100 behind on this month and she is evicting us..Im just freakin speachless..I have been so patient with these people its not funny.. Its new construction so i've tried to be patient.. we have no screens on our windows our yard is not finished it needs to be graded cleaned mowed etc.. these people mow the lawn once a freakin month.. I have pics to prove it it literally gets three feet tall.. our front door is not to code its like a 2 foot drop off.. etc etc etc..but have I said a word.. no..so now on top of not being able to get my kids anything for christmas I have to find somewhere to freakin move..unbelievable..
we moved out here because sears windows hired jj but he has not got one job from them..thanks sears..
took emma to the doct again today and she has a ear infection..so wooo hoo that ear tube is working great..
So im not normally not a begger but if you have family or friends who donate money at christmas..tell them about my family.. I have added a donate now button..if not its cool.. i hate to be a begger anyways.. I just dont know, what were gonna do..so my favorite word will i will end with is blaaaaaaaaaaaaa...
Sunday, November 23, 2008
still not feeling better
well this sinusitus stuff sucks all to heck..Shes coughed so much her ear, the ear she got the ear tube in has started bleeding..also her mickey has been having blood around it.. her antibiotics has given her horrible diarea. so now shes on clear fluids so were back to the docs tomorow for some new med.. I hope all this coughing and stuff doesnt mess up her ear tube.. poor lil thing is pitiful..only thing that makes her feel a lil better is veggie tales..
Saturday, November 22, 2008
cough cough cough
Emma has been fighting a cold for a week now..since her ear tube surgery it has gotten way worse.. all she does is cough she cant sleep or anything..its so pitiful.. and she doesnt know how to cover her mouth so with every cough we are showered.. I took her to the er today and they said she has sinusitus nothing they can do about her cough..they gave her some antibiotics.. and said to put some vicks on her bib.. ok i just dont see that working..I feel like taking someone hostage and making them give her some cough syrup..the way she is coughing i would have guess wooping cough or something..poor girl..she is so upset its making her mad..please pray its better soon.
Wednesday, November 19, 2008
ear tube surgery
well ear tube surgery went great.. no even 5 minutes.. im so glad i pushed for the tube.. she has had 3 infections in 3 months.. plus they kept saying it wasnt infected that it just had fluid built up. but when they released the fluid it was all kind of nasty.. so she is probably going to be feeling so much better.. on the good note her gait trainer was approved. so whats it is in hand im gonna start the battle of the beds.. I cant get the one I truley want just a small one but at least it will be a bed.. she coughs and gags alot at bedtime,so i put 2 pillows under her head and one under her but to hold her and her brace in place.. so every 2 hours or so i have to keep repositioning her... oh did i mention she nows sleeps in my bed so i dont have to keep going accross the room and fixing her..although we both do like the cuddling.. her pt, speech are going great she is taking the girls good..cant wait to get in feeding clinic..well gotta go feed her..
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MAKE A WISH
Toes in the sand
Bahama's princess
make a wish 2013
GROWN UP
MY BOY
i love u
Emma in the nicu