Wednesday, January 28, 2009

crazy people




SmileyCentral.com
This place is a lil crazy..They put high school kids on the bus and the younger kids have to walk or get a ride.. We were the only county to not get cancelled today.. so we get a tiny snow with a big burst of sun an they call school off at 11.. then its pure mayhem at the school.. they have no system down at that school which really freakin urks me.. theres lil kids getting in and out of cars every where walking in front of all the cars.. its just ridiculas how these people shuffle the kids in there..I tried to nicely suggest a way and this old lady bit my head off.. its not my fault..hmm...then they sent nic to the wrong side of the school..the poor kid is in a panic by the time he gets out. its only a matter of time before a kid gets run over or kidnapped or something.. plus theres a sexual offender that lives like 2 blocks from the school.. yea thats really freakin safe.. Personally i think a high school kid has more chance at protecting themself than some lil kid.. freakin rediculas.. ok on the good not nics meds are working most of the time..he has never liked to read at all.. nows hes reading like 2 to 3 books a day..amazing.. of course his fav. was a book about a boy seahorse that falls in love with 2 female seahorses and they live happily ever after.. what kind of book is that.. but thats my boy..still trying find emma a walker the one she has is really heavy.. bla bla bla..

Tuesday, January 20, 2009

another set back

Well I guess we've ran into another issue. Emma's therapist said that her swallow study showed her chewing abilities were absent. which means she may never learn to eat properly. she may have to always have a pureed diet.. I dont know the 1st thing about pureeing..I think i'm going to have to find a dietician to set up a meal plan.. this is like chinese i just dont know it.. I think she has another ear infection.. lot of good that damn ear tube did.. owell another day..SmileyCentral.com

Wednesday, January 14, 2009

another week..

Well another week has come and gone.. Nicholas is doing great with his meds.. we are talking going from 2 hours on homework for the easiest of things to like 5 min. This medicine is a total miracle.. I just hope when he gets up'd that he doesnt quit eating.. I was seriously thinking of military school and driving him to wisconsin, is that the state you can just drop your kids off and not get into trouble.. that was a joke.. He is even holding his own art class at home for mom and dad which is like an hour long and we have to pay him a dollar..lol.. but he is very in to it.. its just crazy.. he would just scribble and get angry and now hes like a lil scholar im just so happy for him.. and emma oh my goodness she went to school again today and she did not want to leave, she looked at me smiled and walked away in her gait trainer it was so cute.. I would have never thought..
my meds on the other hand does have me awake..I can cry now.. which zoloft would not let me do that.. But I am quite anxious.. my hubby really has got the brunt of it.. everything he does gets on my nerves at times I just want to punch him;; poor guy.. NO i would not do that.. I have had alot of sadness and anger at myself for letting myself get this freakin FAT.. I dont even know how to get it off.. I need lapband or something but I have no insurance.. but I guess I will get it off one day..

Friday, January 9, 2009

PMS

So tonight i'm seriously pmsn...you know i get the feeling i'm just not appreciated around here.. when I go shopping its always me buying for everyone else except for me.. when we all go shopping they shop freely while i shop for the house, take care of the baby, change poopy diapers or what ever... I have to worry about when emma eats while they are just ladidaing around.. happily.. so everytime its time to check out.. the baby suddenly gets all the attention while I load the grocheries.. the same at the car.. Am I acting like a baby maybe but it really gets on my nerves..of course they come home with there lil items while i put up the grocheries get the babies food ready..etc etc.. he changes 2 freakin diapers in a row and he thinks he deserves a dad of the year award.. big freakin woopty doo...wheres my freakin award people..rrrrrrrrrrrrrr Ok on the good note nics new medicine is working great..its like a miracle drug.. thank god my eye twitch was coming back in full bloom..

Wednesday, January 7, 2009

my baby went to school





well lastnight I got no sleep.. nics new medicine kept him up so i let him sleep with me..yea that was fun.. The cat kept trying to sleep on my head.. then at like 3 in the morning i hear a huge thud nic hit the floor. so he cried for like 10 minutes I felt so bad for him.. everytime he snored emma would start to wake up..Oh did i mention no school bus's where we live..The lady at the school probably thought I was nuts when I blurted that sucks.. but It was all worth it..emma started a lil school today for disabled kids.. its only once a week for 3 hours.. but they said she did great.. so Here are some pics I got when I went to pick her up..I was so unbeliavably proud.. I totally wanted to cry when Seen her sitting there at the round table with all her lil friends..oh almost forgot. nics dr is thinking its not just adhd he thinks mayber asbergers or autism.. so well find out soon.. The last picture is when she first seen me.. do you think she was waving.. shes so cute..

Wednesday, December 31, 2008

I'm back with some new pics

well christmas went pretty well.. were all moved and loving the new place.. got lots of new pics.. if you have time to watch the montage at the end is a small video of emma in a johny jump up.. she was hillarious in it.. when you see her move side to side thats when she was cracking up.. shes giggled but never has she ever had a good gut laugh it was great she had us all crying it was so funny.. so emma got on tv for like a second.. I knew they would cut us.. we are just not camera people we freeze up and its just not good.. so hope everyone is good.. now watch my video.. heres a picture also of emma getting Jr asparagus from veggie tales.. she loves them so much..

Tuesday, December 16, 2008

so excited for emma

well i have to edit this update..jj's work hired him sooner than we thought.. so thats means no check for 2 weeks. we litterally have 1 dollar when it rains it pours..blaaaaa



we went to occupational therapy today and found out someone has adopted all the special needs kids and got them a bike for christmas.. I am so excited for her this is one item I wanted for her.. can you believe someone would do that just awsome.. her new walker is going to be in today so we can pick them both up hopefully on thur.. hes a picture from elfe your self.. i love that site.. i know a lil cheesy..

Thursday, December 11, 2008

A ray of hope in our luck..


Well let me start off by saying wooo hoo im at 100 posts.. I know who cares.. anywho.. today has been very overwhelming.. The emergency grant that i am recieving has truly saved us.. not only have they approved it but they are going to pay 2 months rent, security deposit, and start our utilites.. Then a very nice person offered for me and my family to stay with them through the holidays.. unbeliavable kindness these people have shown my family. oh its not over.. JJ'S work wants to buy the kids each a toy, then another lady gave jj 3 $15 gift cards...and of course you mommy..:) its going to be a hectic time around here, moving, packing, school, therapies...nicholas should get in to see the specialist soon.. I hope he really needs his meds.. a few years ago i was totally against them but now.. I see the diffence. we are looking into him maybe having odd.. its opositional defiance disorder.. who knows though.. i cant even ask him to brush his teeth without a battle.. life is very stressful around here.. thanks for all your support to the few that read this.. I know I have whined alot lately but maybe next year i will live up to my name and be a JOY.. If you guys have a united cerabal palsey in your state look them up.. they have so much stuff to offer people..

Wednesday, December 10, 2008

moving at christmas!





Ok so we went to court today.. I basically got kicked out because emma would not be quite.. my non verbal child picks today to be noisy..lol.. but the judge sided with them..and we have to be out in 10 days..they couldnt even figure out how much we owed them, dumb ass's.. jj had to explain it over and over again..so basically we owe them 400 for dec.. which means we didnt even owe for last month.. its all very confusing.. but the good news is our emergency housing grant has gone through and hopefully we will get that real soon since we only have 10 days.. hopefully the place we want will let us probably not now since we have a evict on us.. dont know how all this works im new to this looser life i lead..lol..
well emma is doing really good at pt..I have to start brush therapy on her.. its really strange..she hates anyone touching her upper half.. so this should help with that.. but from what im hearing she has basically failed speech therapy.. they had already just switched to finding a communication device. but she only wants to beat on things and she has to learn to manipulate things and so far she has not got it.. so we might just switch to feeding therapy... im probably gonna have my phone and stuff cut off in a couple of days so i will be inspired to pack again.. im posting some pre chistmas pics free food and bowling..woohooo.. so christmas might come next year for us.. so pray for us and well pray for your this season..

MAKE A WISH

MAKE A WISH
Toes in the sand

Bahama's princess

Bahama's princess
make a wish 2013

GROWN UP

GROWN UP
MY BOY

i love u

i love u

Emma in the nicu

Emma in the nicu