small update

SO weve had a million appointments this week..of course she has another ear infection,plus a yeast infection..do they ever go away.. so this time were gonna try ear drops for 2 months. that seems like a long time to me..but hey if it works..well when we go back in 2 months if her ear is still full of liquid and puss, were going to see the hearing aide specialist about a BAHA SOFT BAND. if its clear we will postpone it for awhile. although if its up to me, i would just keep the appointment. for the past year emma has not had an unclogged or uninfected ear, which means shes not hearing much. since she only has 1 ear its crusial for her to be able to hear. So i'm being a lil pushy with the ent. I would like for her specialist to be a lil more helpful..just urks me..

her new milk is doing her good shes almost to 26 pounds and 34 and half inches..big girl..with the bed and the milk she almost never pukes anymore, life is good.. So i'm trying to get her into a new therapy called vital stim. Its for people who have trouble eating,drinking,drooling. they put electrodes on there neck and its supposed to help in the teaching process.. hopefully I can find someone close enough.. well thats about it..

Being a special needs mom

So today I'm having a bla day. some times I get so tired of going to dr's. Just to hear the when did your baby roll over, crawl walk, talk, etc freakin etc. I really hate the term retarted and hate severly retarted even more. Emma can not do these things, but she can play a toy with all her heart she will pound on her piano like there is no tomorow. She must understand things because she loves veggie tales, spongebob she laughs when things are funny. I wish I could just burn that R word. She does understand things she just cant communicate them. Sometimes she wants to talk so bad she just tries to pull her hair out. YES I understand that she is behind and is damaged in a way. But she is so smart in her own ways. why does it have to be compared to text book. MY GIRL IS FUNNY, BEAUTIFUL, AMAZING, A MIRACLE, sometimes when she looks into your eyes its like shes looking beyond to my heart, I know its so cheesy but I just cry. no ones ever looked at me the way she does, I do feel special and important. One day my girl is gonna walk, she may never talk but We will try everyday and hope for a miracle. I hope one day she will get to eat a taco.. I know how weird am I, but i'm a cali girl and just always thought my child would eat like me..You know I just want her to reach her full potential. I want people to knwo her to know how special she is and not to be scared of her. Sometimes when we go to walmart I just want to head but someone, why do people have to stare.. SO FREAKIN WHAT SHE HAS ONE EAR..she is no different than your child infact she may even be a BIGGER MIRACLE..yes i'm stressed. I'm just tired of the books and the looks.. you know what I mean.. LOOK AT THAT SMILE PEOPLE i JUST CANT GET ENOUGH OF IT..

Find The Kiddie Pool... Help Change Emma C's Life -adaptivemall.com

Find The Kiddie Pool... Help Change Emma C's Life -adaptivemall.com

not much..

NOT MUCH REALLY GOING ON THIS WEEK. EMMA MOVED TO 2 DAYS OF PT.. 1 DAY OF EXERCISE AND 1 POOL DAY. I REALLY WISH I WOULD HAVE HAD MY CAMERA FOR POOL DAY THIS WEEK EMMA IS SO COMICAL..SHE PLAYED POSSUM AND ACTED LIKE SHE FEEL ASLEEP SO WHEN I GOT HER IN MY ARMS SHE SMILED AND WAS ALIVE AS EVER..BUT 15 MINUTES LATER SHE REALLY DID FALL ASLEEP HARD.. SHE HAD EMMA FLOATING ON TOP OF THE WATER LIKE SHE WAS DEAD OR SOMETHING..IT WAS HILARIOUS HOW CAN YOU FALL ASLEEP IN A POOL, SHE WAS JUST OUT.. SHE IS GOING TO SCHOOL 2 DAYS A WEEK NOW..

I WENT TO A SUPPORT GROUP FOR AUTISM, I REALLY WAS SCARED TO GO SO NERVOUS..I KIND OF SUFFER FROM SOCIAL ANXIETY SO IT WAS BIG FOR ME TO GO ALONE..IT WAS REALLY A GOOD MEETING, I DIDNT LEARN MUCH ON ASBERGERS BUT WHEN EMMA STARTS SCHOOL IT WILL BE HELPFUL..I MET ALOT OF NICE PEOPLE SO IM LOOKING FORWARD TO THEM STARTING AGAIN.

KRIS ALLEN WOOOHOOOO....

OK THE FINALE WAS GREAT..GO KARA SHE KICKED BICKINI GIRLS BUTT...LOL...LOVED IT.. WOOHOOO GO KRIS..

asbergers/autism finally an answer!

Well I had an hour and half meeting at the school for nic today and finally got an answer. His doctor had already said what he thought it was but was waiting for the school to give there answer.. So now our goals switch from learning and adhd to autism/asbergers. I'm so glad to have an answer to all his lil issues. I was really starting to think just bad parenting skills or something..Plus normally he's really different at school than home. but we all came back with the same issues. So now im gonna look into some camps on social skills maybe anger management or something. Atleast now I know he doesnt mean to be a hudlum..lol..

I am a little sad that I was right about him not making friends.. for years now I have tried to tell the teachers about his friend issues and someone finally sat down and watched..For 2 years in south carolina I would sit in my car and cry for my child hiding under the slide. Its so hard to see your child feel sad and lonely. I want the world for him. He is a great kid he would do anything for anyone he just doesnt know how to step forward and say hello..does that make sense. If someone bumps him he thinks they did it on purpose. so mom and nick have alot to work on this summer..

ps emma has found her tongue its so cute she keeps sticking it out and to the side totally cute..1 more day of school for nick....bahahaaaaa.. please pray for peace in my family..that I have patience and love when needed..for emma to keep feeling better. and for nic to find a friend that understands and excepts him..

pics and video

Make an on-line slideshow at www.OneTrueMedia.com

so there are couple new things going on this week.. medicaid turned down a bed, the appeal and the fair hearing they said that the dr screwed up the order so I have to start all over..but the good news is I found a bed online on craigslist for very cheap.. and it is working out great.. the only thing I dont like is she likes to stick her arms and legs out the side so if she gains to much weight we might have a problem.. We are changing course with her gait trainer we took the seat off and added the arms so now were going into kick mode with her..shes not eating right now so we have to try to get her to start eating again since she is feeling good..again..oh yea shes also wearing this thing called a benik vest to help with her low tone so well see how all this goes.. guess thats it for now..

american idol and alley mcbeal..lol

Ok 1st off i'm sending some good luck vibes to kris allen on american idol..he's totally my choise.. I know adam rocks and he is the king of rock.. an danny is good and warms my heart and makes me cry cause hes a widower..lol.. but kris is awsome..tell me hes not.. do you here that song on my page..hopefully my good luck vibes dont send my lil black cloud his way.. my and my hubby love american idol..

on the good note emma started 2 days a week for school. and she really seems to enjoy it.. her gait trainer makes her the popular kid..lol..kids are always all over her when I go there.. its so cute..she is feeling much better these past few days thank god..

on the other note.. nic is really testing us.. I just dont understand why he is an angel at school but at home he's crazy. I cant get him to do anything.. everything is a fight..I took his games away a month ago. he asks daily for them but still will not listen to get them back..anyone who read this used to be an alley mcbeal fan..well if so I alley mcbeal him in my head daily..I have taken to a stress pill once daily to try to be patient with him.. so my prayer for this week is let me have patience and lots of love for him..because in my head I shake him daily..only in the alley mcbeal sense..please god let me figure out something with him.. because he is not even 9 yet. and if we have to deal with this until hes a teenager, it will probably get worse. and i dont think me and daddy will live through it.. at least not with a full head of hair, a twitching eye and no nerves left..
PS.. DANNY GOKEYS GOING HOME.. GO KRIS..

HAPPY MOTHERS DAY..

Most women became mothers by accident, some by choice, a few by social pressures and a couple by habit.

This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over Earth. As he observes, he instructs his angels to make notes.

"Armstrong, Beth; son; patron saint, Matthew. Forrest, Marjorie; daughter; patron saint, Cecilia. Finally he passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one, God? She's so happy."

"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter?"

"But has she patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you."

God smiles, "No matter. I can fix that. This one is perfect.

She has just enough selfishness."

The angel gasps, "Selfishness?

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word. She will never consider a 'step' ordinary. When her child says 'Mama' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.

I will permit her to see clearly the things I see - ignorance, cruelty, prejudice - and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life."

"And what about her patron saint?" asks the angel.

God smiles. "A mirror will suffice."
author unknown.

asking for some healing prayers..

Well she is sick again or still sick.. it kind of switches so I dont know if its coming or going..she had the ear infection, which made her poo blood from the antibiotics, then after the ear healed she got gastristis which now has changed over into a horrible cough.. I seriously need to find a new doctor or something. because I dont know is it normal for a child to be this sick all the time, I know she has an extra chromosome but does that make her be sick more I just dont know. I really feel she needs steroids or something..I'm gonna try to figure something out to boost her imune system.. cause this bites. SO PLEASE EVERYONE SAY A PRAYER FOR HER TO BE BETTER TO HEAL FROM ALL THIS SICKNESS. FOR SOMEONE TO TAKE HER SERIOUS ABOUT HER LAZY EYE, ABOUT HER HEALTH. life is so scarey.