Monday, September 29, 2008
today I am reminded that we all need to hug,kiss, and love our children. just how they are.. so many times people, me take for granted life and the life of our children. I am a regular member on a chat room type place, its a place were moms came come together and chat about there special needs child. sometimes even get free or reduced medical supplies. if it werent for this place emma would have no feeding tube extentions and for me I would have no many people to chat with.. any how.. I made a friend on there, not a close friend but we have chatted. her baby has passed on.. I hope the mom is ok.. i just feel so bad. plus another mother on this site just lost her lil boy.. life is so scary,funny we never know when its going to be our time.. so please just love your life, love your family..be grateful..please say a prayer for cynthia and her baby cheyenne.
on the good front.. emma ate about 2 tablespoons of baby food tonight i think she really liked the flavor.. this is the ONLY time she has ever reacted like this.. she was trying to chew it and even swallowing it.. I know it smelled good.. If I put it down she would wine.. which is new too.. shes so peaceful.. ow my car is about to get repossed all i can say astaloowago.. buddy.. on the good news is ssi is going to give me 2000 of her money to buy a used car.. wooohooo.. I just pray to the lemon fairies to stay away from my car.. i hopefully i can go get it tomorow.. well thinking of everyone.. oh yea emma got her 5th tooth..thats only in 3 months crazy. and she has another ear infection thats 3 in 2 months.. so ear plugs are probably in our close future.. bless and love to all..
Friday, September 26, 2008
well we went for our 1st speech eval at the new place, loved it.. Its a christian based therapy place and they just seem so nice.. her appointment went good.. I know as emma's mom how much she communicates.. she smiles and interacts with me but no type of verbalizations or really communicating. i dont know you guys would understand that but.. she scored at a 1-3 month old level on verbalization. so our sessions are going to somewhat focused on finding the right equiptment for her.. although it will have to be tough because she will beat something to death.. guess we cant get her a puppy. lol... nics doing good in school. I think hes gonna need glasses.. boo hoo... hes been in some type of special education since he was about 3 and a half. I guess tennesse is more strict out here.. even though he cant concentrate and complete his work in a timely matter I think there gonna drop him. unless he winds up with hearing problems.. hes failed 2 hearing tests and passed one so im still gonna get that rechecked.. other than that all is good.. still broke, fat, depressed.. but im still kickin..lol..
Wednesday, September 17, 2008
sorry for you sensitive folks out there... but i really do hate the govt.. they dont care about people.. if your unemployed to long you cant get help but if youve had a job for 2 weeks you cant get help in a hurry either.. they tell i have to cancel my food stamp car in south carolina to get help so i do.. now they say were not in emergency status any longer.. what the F four and half months of being unemployed is not an emergency.. my kid has flunked a hearing test and an eye exam.. is that not cause for some medicaid in a hurry... frikriloeirlakdsnfkjdbk;....
Monday, September 15, 2008
Friday, September 12, 2008
Well today and everyday im reminded what a total miracle emma is.. when i see pictures of other children with her syndrome..alot have passed and some are fighthing for there lives.. emma was blessed i am so thankful for her health.. she may not walk or talk or eat.. but i would have that any day over her being seriously ill.. Please pray for lil recesse.. she is really ill and has a constant battle with life.. I wine and cry about my bills and life but nothing would be worse than having a sick child.. i seriously need to check on nicholas's nerves or what ever you want to call it.. he just has no sense of handling his emotions.. he goes from 1 to 10 in 1 second flat.. he will hit himself and just go crazy.. maybe hes seriously spoiled i just dont know.. i know it tears my nerves up..
Wednesday, September 10, 2008
Well so far school is going ok with nic.. were out of adhd meds so its been a chore to do work with him.. he started cub scouts this week.. can you believe the uniforms are like 100 dollars.. thats freakin crazy.. he seems to like his school though.. well we seen a pediatrician.. who sucks.. hopefully when we get to meet ours hell be nice.. we should be starting speech physical and occupational therapies soon.. still havent found anyone to order her a walker..blaa.. emma is doing really good she did have a second ear infection in 1 month.. so i might look into an ear tube.. we have to protect her one ear..she has been getting really vocal lately its so cute.. still no real baby sounds.. but hey atleast its some noise.. shes loving to stand up.. shes also liking stage 3 baby food.. not really drinking though.. we got a new fancy feeding pump renting of course.. oh yea i might be able to get a paycheck since i stay home and take care of emma.. so cool.. and emma might start school.. what i know.. its for disabled kids its only like 6 hours a week but i think it might be good for her.. of course ill check it out.. well later for now.. me and jj are ok.. well be better when we get caught up..