Wednesday, June 24, 2009

small update

SO weve had a million appointments this week..of course she has another ear infection,plus a yeast infection..do they ever go away.. so this time were gonna try ear drops for 2 months. that seems like a long time to me..but hey if it works..well when we go back in 2 months if her ear is still full of liquid and puss, were going to see the hearing aide specialist about a BAHA SOFT BAND. if its clear we will postpone it for awhile. although if its up to me, i would just keep the appointment. for the past year emma has not had an unclogged or uninfected ear, which means shes not hearing much. since she only has 1 ear its crusial for her to be able to hear. So i'm being a lil pushy with the ent. I would like for her specialist to be a lil more helpful..just urks me..

her new milk is doing her good shes almost to 26 pounds and 34 and half inches..big girl..with the bed and the milk she almost never pukes anymore, life is good.. So i'm trying to get her into a new therapy called vital stim. Its for people who have trouble eating,drinking,drooling. they put electrodes on there neck and its supposed to help in the teaching process.. hopefully I can find someone close enough.. well thats about it..

Saturday, June 20, 2009

Being a special needs mom



So today I'm having a bla day. some times I get so tired of going to dr's. Just to hear the when did your baby roll over, crawl walk, talk, etc freakin etc. I really hate the term retarted and hate severly retarted even more. Emma can not do these things, but she can play a toy with all her heart she will pound on her piano like there is no tomorow. She must understand things because she loves veggie tales, spongebob she laughs when things are funny. I wish I could just burn that R word. She does understand things she just cant communicate them. Sometimes she wants to talk so bad she just tries to pull her hair out. YES I understand that she is behind and is damaged in a way. But she is so smart in her own ways. why does it have to be compared to text book. MY GIRL IS FUNNY, BEAUTIFUL, AMAZING, A MIRACLE, sometimes when she looks into your eyes its like shes looking beyond to my heart, I know its so cheesy but I just cry. no ones ever looked at me the way she does, I do feel special and important. One day my girl is gonna walk, she may never talk but We will try everyday and hope for a miracle. I hope one day she will get to eat a taco.. I know how weird am I, but i'm a cali girl and just always thought my child would eat like me..You know I just want her to reach her full potential. I want people to knwo her to know how special she is and not to be scared of her. Sometimes when we go to walmart I just want to head but someone, why do people have to stare.. SO FREAKIN WHAT SHE HAS ONE EAR..she is no different than your child infact she may even be a BIGGER MIRACLE..yes i'm stressed. I'm just tired of the books and the looks.. you know what I mean.. LOOK AT THAT SMILE PEOPLE i JUST CANT GET ENOUGH OF IT..

Friday, June 5, 2009

Tuesday, June 2, 2009

not much..

NOT MUCH REALLY GOING ON THIS WEEK. EMMA MOVED TO 2 DAYS OF PT.. 1 DAY OF EXERCISE AND 1 POOL DAY. I REALLY WISH I WOULD HAVE HAD MY CAMERA FOR POOL DAY THIS WEEK EMMA IS SO COMICAL..SHE PLAYED POSSUM AND ACTED LIKE SHE FEEL ASLEEP SO WHEN I GOT HER IN MY ARMS SHE SMILED AND WAS ALIVE AS EVER..BUT 15 MINUTES LATER SHE REALLY DID FALL ASLEEP HARD.. SHE HAD EMMA FLOATING ON TOP OF THE WATER LIKE SHE WAS DEAD OR SOMETHING..IT WAS HILARIOUS HOW CAN YOU FALL ASLEEP IN A POOL, SHE WAS JUST OUT.. SHE IS GOING TO SCHOOL 2 DAYS A WEEK NOW..

I WENT TO A SUPPORT GROUP FOR AUTISM, I REALLY WAS SCARED TO GO SO NERVOUS..I KIND OF SUFFER FROM SOCIAL ANXIETY SO IT WAS BIG FOR ME TO GO ALONE..IT WAS REALLY A GOOD MEETING, I DIDNT LEARN MUCH ON ASBERGERS BUT WHEN EMMA STARTS SCHOOL IT WILL BE HELPFUL..I MET ALOT OF NICE PEOPLE SO IM LOOKING FORWARD TO THEM STARTING AGAIN.

MAKE A WISH

MAKE A WISH
Toes in the sand

Bahama's princess

Bahama's princess
make a wish 2013

GROWN UP

GROWN UP
MY BOY

i love u

i love u

Emma in the nicu

Emma in the nicu