Monday, July 27, 2009

nicks genetics are back...


Well I got nicks genetics test back and all is well with most of it.. but unfortunatly he does have a balanced translocation like me.. Can I just say I am so sad. I always dreamed of having kids, doing the normal adolesant things that they do, girlfriends boyfriends heartbreaks. now I may not even get grandchildren. I feel like a bad egg.. Why did this happen to me.. Dont get me wrong I LOVE MY KIDS MORE THAN MY LIFE.. but couldnt this have just skipped him. why can he just have a happy normal life. You know we dont have family not really everyone lives away. So one fear we have is who will take care of our children, especially emma will this fall to nick if he is old enough, now will nick have children or children like emma..doesnt he have enough to worry about than to have this now..so my moto for the day...BLA BLA BLA....PS SORRY FOR THE CUS WORDS BUT i NEEDED IT..

Saturday, July 25, 2009

the meaning of emanuel


I thought this was neat..because as you all know emma has emanuel syndrome.

E•man•u•el


Pronunciation: (i-man'yOO-ul), [key]
—n.
a male given name: from a Hebrew word meaning “God is with us.”

I love the meaning of names.

Emma means whole, universal.

So heres my point of view. emma who has lots of problems, maybe because she is a lil broken, maybe..since god is with us, she is whole..this is emma..she is supposed be.. did that make sence.. emma also is a form of emanuelle. I think that is neat since i had no clue she had emanuel syndrome.. Its like a lil circle.. ok.. yea I have my crazy brain on today..

Friday, July 10, 2009

emma's new swing

PS CAME BACK TO UPDATE BEEN 3 DAYS AND SHE STILL LOVES IT THIS THING IS AMAZING





IF YOU HAVE A SPECIAL NEEDS CHILD HECK JUST A BABY.. THIS PRODUCT IS AWSOME..
NEVER HAS EMMA LIKED TUMMY TIME UNTIL NOW..ITS CALLED A WINGBO.. IT IS PRICEY..200.00 but if you say your from melissa's group on special child exchange you can get 10.00 off. from the second I put her in it she was happy.. I have to say I did cry a lil..I never thought she would do tummy time.. that has to come before walking.. i think the website is winbousa.com.. so get one people..

Wednesday, July 1, 2009

bound by chains


Size 2
New Graphics



So this post is kind of in reference to so you think you can dance..They did a dance tonight that reminds me of my life. the couple was chained together with a chain. GOOD GOD.. this week I feel I have 3 attached to me. I seriously need a break, a breather alone time and not in the middle of the night..
I LOVE LOVE MY FAMILY. but good golley they are clingey.. alot of people have family an friends around. its mainly us 4. we are bound, by love, stress. I live for them.. but I really just need a break..emma loves so you think you can dance.. If I hold her up she will dance like a crazy women its so cute.. I would get it on video but mommy so is not gonna be in it..I think this week i'm gonna take a break from everything. Im just not feeling well..My back hurts,my head I keep getting dizzy spells and IM REALLY FREAKIN STRESSED. So now I will go back to my lovely chained life..and hope the stress will go away soon.. maybe being lazy this week will do me some good. who knows maybe a miracle will happen and my hubby will let me go to the movies by myself..ha ha...seriously people if I'm gone for 1 hour..the world as they know has come to an end..

It Feels Like Monday
Get more Graphics and Twitter Backgrounds


MAKE A WISH

MAKE A WISH
Toes in the sand

Bahama's princess

Bahama's princess
make a wish 2013

GROWN UP

GROWN UP
MY BOY

i love u

i love u

Emma in the nicu

Emma in the nicu