Saturday, June 20, 2009

Being a special needs mom



So today I'm having a bla day. some times I get so tired of going to dr's. Just to hear the when did your baby roll over, crawl walk, talk, etc freakin etc. I really hate the term retarted and hate severly retarted even more. Emma can not do these things, but she can play a toy with all her heart she will pound on her piano like there is no tomorow. She must understand things because she loves veggie tales, spongebob she laughs when things are funny. I wish I could just burn that R word. She does understand things she just cant communicate them. Sometimes she wants to talk so bad she just tries to pull her hair out. YES I understand that she is behind and is damaged in a way. But she is so smart in her own ways. why does it have to be compared to text book. MY GIRL IS FUNNY, BEAUTIFUL, AMAZING, A MIRACLE, sometimes when she looks into your eyes its like shes looking beyond to my heart, I know its so cheesy but I just cry. no ones ever looked at me the way she does, I do feel special and important. One day my girl is gonna walk, she may never talk but We will try everyday and hope for a miracle. I hope one day she will get to eat a taco.. I know how weird am I, but i'm a cali girl and just always thought my child would eat like me..You know I just want her to reach her full potential. I want people to knwo her to know how special she is and not to be scared of her. Sometimes when we go to walmart I just want to head but someone, why do people have to stare.. SO FREAKIN WHAT SHE HAS ONE EAR..she is no different than your child infact she may even be a BIGGER MIRACLE..yes i'm stressed. I'm just tired of the books and the looks.. you know what I mean.. LOOK AT THAT SMILE PEOPLE i JUST CANT GET ENOUGH OF IT..

4 comments:

Anonymous said...

My husband says all the other kids are the ones not normal, our Gracie is just fine...I love when he says that......
Maria, Gracies mom

The Brezenski's said...

I know how you feel. I too look at Grace and just want everyone else to see what I see. A beautiful amazing girl. It is hard to have a baby with so many needs, but it has made me more aware...I am a better person, a better teacher, and a great mom because of all we have had to go through! Your daughter is beautiful!

The Brezenski's said...

I know how you feel. I too look at Grace and just want everyone else to see what I see. A beautiful amazing girl. It is hard to have a baby with so many needs, but it has made me more aware...I am a better person, a better teacher, and a great mom because of all we have had to go through! Your daughter is beautiful!

Deborah said...

Been thinking of you.

Sending some hugs your way.

:)

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